|All ready to go.....|
Now, onto the not so great part of the visit. We have been up to this point, (clearly, quite foolishly I might add) been thinking, "okay we go in, we do surgery, we fix the problem, done deal." Yeah, not so much.
Dr. Heflin took a new set of x-rays today to get a fresh look, and well, it's somewhat worse than we thought. Apparently, her case is really bad. He feels fairly confident that we can get this done with 4 surgeries. He does not want to do both hips at the same time, because given the magnitude of the surgery, it would just be too much for Mia. They want to minimalize blood loss and pain, and feel that to do the surgeries separate would be better. So, on the 23rd, the will go in and fix her right hip only. She will be in surgery for 4-5 hours....and, in the hospital for 4-5 days. While in surgery, they will do away with the additional sets of hip sockets which Mia's body has tried to produce, the will have to cut and form the sockets which never formed correctly, they will have to "clean out" the area of the socket which right now has ligaments, tendons & muscles growing in there, since the femur was never in there to keep them out, and well, cause basically they could. And, last but certainly not least, they will shorten her femurs by about a half inch. They will put in "hardware" (plates, rods, screws, etc) to hold everything together. Then, she will go in a cast for 3 months. During that 3 months, she will undergo several CT scans, to be sure that the hip isn't moving...if it does move at all, we go in immediately, open her back up and put it back. (We're praying this doesn't happen !!)
After the 3 months, they will cut her out of the cast, and do the entire process again on the left side. Back in the cast for another 3 months. At some point (and I'm not clear when, I was a little 'dumbfounded' and still somewhat stuck on 4 surgeries !) they will have to go in to remove the hardware. One surgery for each side. Hence the total 4.
Now, this surgery is Mia's best chance at being able to avoid total hip replacements by age 20. And, while he says she will never be 100% and will always have limitations, this will ease her current pain, and prevent further crippling. Or so we all hope. He does feel that Mia's hips are "salvageable", (and he tried so hard to be kind when he said that), but he let us know he's
going to do his best to get her as close to "right" as he can.
The only thing he stressed over and over again, was how "major" this surgery is, and how "horrible and long her road to recovery will be". By the end of the meeting, we got it. There is nothing easy about this procedure...and there's nothing easy about afterwards.
So, we will be at Egleston Children's Hospital at 6 a.m. on the 23rd of August....to prepare for surgery at 7:30 a.m.
We are going to ask that everyone say a prayer for Mia at 7:30 a.m. on the 23rd. Please.
We are so grateful to each and every one of you for being with us, and for walking beside us. We love and appreciate you, your prayers, and the way that you have all loved us.
We have incredible hopes for our Mia. We trust that God will guide Dr. Heflin, God will heal our Mia, and that God hears all of your prayers for us. God gives us strength through you.
With an incredibly sincere heart, thank you.
And, thank you for being a miracle for our Mia,
With a Mommy's heart,
|waiting for the doctor, playing with Daddy's hat.|
|Aren't I cute ??!!|