Sunday, August 21, 2011

Say You Will....

Say that you'll come with us,
Say that you'll go too
Promise you'll be by our sides
And that you'll pull us through.

Say that she will walk again
and run and jump and dance,
say her pain will all be through
for sure, not just "a chance"

Say that you'll stay with her
in rooms where we can't go
and guide her surgeon's heart and hands,
and that Your peace he'll know.

Say that you will strengthen us
and help us help her heal,
And, say your strong and loving arms
are what we'll always feel.

Say you understand our hearts
our hopes, our prayers, our dreams
and say you'll take away our fears
as hard as that all seems.

Say your love for us is great
say you're in control
say you'll help us turn to you
when 'weakness' takes its toll.

I shouldn't need reminding, Lord
I know you're with us everday
You show your love and 'lift us up'
through those you send our way.

The love that has surrounded us
could only come from you,
Bless them all, Lord, one by one
and let them know we love them too.

We're thankful that you carry us
as "uncertainty" draws near
we know that you will hold us tight
 with you, we need not fear.

Yes, I do believe you'll come with us
and that you will go too
and that you'll be right by our sides
and that you'll pull us through !

Thursday, August 18, 2011

Cards & Letters

You guys are all soooooooo great !!!!!!
And, because so many of you have asked where you can send a card/letter, Mia's amazing Memaw & Poppy have set up a P.O. Box for her so that you can !!!!!!  Thank you, Memaw & Poppy !!!! And, thank you to all of you for your constant love, support & Prayers !!!! ;)

Please send to:
Miss Mia Jay
P.O. Box 27
Lovejoy, Ga 30250

And, thank you all for being a miracle for our Mia ! ;)
With a Mommy's very grateful heart,

Monday, August 15, 2011

Surgery details....

All ready to go.....
 Ok, so as you all know, today was the day to "meet the surgeon".  He is the best part of our visit !!!  He's a wonderfully sweet man, seems very capable, and he and Mia got along great !!! No meltdown like we on Friday with the pediatrician !!!  That's the good news !!!!  Mia really likes her "new friend" Dr. Heflin !!  And, Mommy and Daddy do too.

Now, onto the not so great part of the visit.  We have been up to this point, (clearly, quite foolishly I might add) been thinking, "okay we go in, we do surgery, we fix the problem, done deal."  Yeah, not so much.
Dr. Heflin took a new set of x-rays today to get a fresh look, and well, it's somewhat worse than we thought.  Apparently, her case is really bad.  He feels fairly confident that we can get this done with 4 surgeries.  He does not want to do both hips at the same time, because given the magnitude of the surgery, it would just be too much for Mia.  They want to minimalize blood loss and pain, and feel that to do the surgeries separate would be better.  So, on the 23rd, the will go in and fix her right hip only.  She will be in surgery for 4-5 hours....and, in the hospital for 4-5 days.  While in surgery, they will do away with the additional sets of hip sockets which Mia's body has tried to produce, the will have to cut and form the sockets which never formed correctly, they will have to "clean out" the area of the socket which right now has ligaments, tendons & muscles growing in there, since the femur was never in there to keep them out, and well, cause basically they could.  And, last but certainly not least, they will shorten her femurs by about a half inch.  They will put in "hardware" (plates, rods, screws, etc) to hold everything together.  Then, she will go in a cast for 3 months.  During that 3 months, she will undergo several CT scans, to be sure that the hip isn't moving...if it does move at all, we go in immediately, open her back up and put it back. (We're praying this doesn't happen !!) 
After the 3 months, they will cut her out of the cast, and do the entire process again on the left side.  Back in the cast for another 3 months.  At some point (and I'm not clear when, I was a little 'dumbfounded' and still somewhat stuck on 4 surgeries !) they will have to go in to remove the hardware.  One surgery for each side.  Hence the total 4.
Now, this surgery is Mia's best chance at being able to avoid total hip replacements by age 20.  And, while he says she will never be 100% and will always have limitations, this will ease her current pain, and prevent further crippling.  Or so we all hope.  He does feel that Mia's hips are "salvageable", (and he tried so hard to be kind when he said that), but he let us know he's
going to do his best to get her as close to "right" as he can.
The only thing he stressed over and over again, was how "major" this surgery is, and how "horrible and long her road to recovery will be".  By the end of the meeting, we got it.  There is nothing easy about this procedure...and there's nothing easy about afterwards.

So, we will be at Egleston Children's Hospital at 6 a.m. on the 23rd of prepare for surgery at 7:30 a.m. 
We are going to ask that everyone say a prayer for Mia at 7:30 a.m. on the 23rd.  Please.

We are so grateful to each and every one of you for being with us, and for walking beside us.  We love and appreciate you, your prayers, and the way that you have all loved us.
We have incredible hopes for our Mia.  We trust that God will guide Dr. Heflin, God will heal our Mia, and that God hears all of your prayers for us. God gives us strength through you.
With an incredibly sincere heart, thank you.

And, thank you for being a miracle for our Mia,
With a Mommy's heart,

waiting for the doctor, playing with Daddy's hat.

Aren't I cute ??!!

Friday, August 12, 2011

Meeting the new Pediatrician...

Okey dokey....weeeeell, the lesson learned today was, "don't assume anything will be simple" !! LOL

Today, we went to meet Mia's new pediatrician.  The thought process was that since she is going to be a new patient for him, and him a new doctor for her, well, I thought they should meet.  I don't know that I won't need to call him after surgery for something else, and I just kinda thought that as her new doctor he should have a "heads up" that she's having the surgery, etc.  For the past couple of weeks and up until today, I was thinking..."no real examination....yeah, ok...we should be good !!!  A piece of cake !!".  WRONG!!
Apparently all of these doctors visits have made my girl somewhat paranoid.  She had a HORRIBLE meltdown, didn't want him to touch her, to look at her or anything!  It was just "ugly".  On a couple of different levels.  Our new doctor (who really is a VERY nice man) said that Mia looked good...checked her iron...looked her over...watched her walk...and, said to let him know how the surgery goes.  I feel better that he knows, at least, a little something about her now.  As the visit progressed, I began to get a glimpse of not only Monday's visit to meet her surgeon...but, the week after, when we go for surgery.  If she reacts anything like she did today...well, let's just pray she doesn't.  The only thing that calmed her down was her music.  Thank God I have her favorite group (Il Volo) on my phone....she said, "Ignazio sing to me and make me feel better.".....You got it !!! Grabbed the phone, pushed the button and said, "Sing, Ignazio, Sing !!!"....thankfully, it worked, she settled down, and we could get her dressed and out of there !!!! ;)

Aside from the meltdown of "biblical proportions", the visit was very good.  We believe we have found a very good doctor for our Mia to see....and, we became even more incredibly aware of how grateful we are for all of the prayers being said for Mia and for us.  Please, please keep them up !!!  Clearly, we need them !!  ;)

Monday (8/15/11) should be another post, after we meet the surgeon, and get all the details for surgery.

Thank you all for your continued love, support and prayers, and thank you for being a miracle for our Mia !!!
With a Mommy's heart,

listening to Ignazio, Gianluca & Piero, and beginning to settle down....

This is Daddy's "she's breaking my heart" face....he just wanted to get his girl out of there !! ;)

Monday, August 1, 2011

A Side Note...

Ok, well, we're going to digress from health related things for just a minute.  We have GOT to tell you all about the MOST amazing group of people that we have met, but first, we must introduce you to the reason why !!!  Over on the right hand side of this page is a section called "Little things that make Mia smile"...and, in that list, you will see "Il Volo".  <---there's your reason 'why' !! LOL  Mia wants to make sure that everyone knows who Il Volo is, how much she loves them, and how great they have been to her ! 
We first encountered Il Volo when they made their American debut on American Idol....had a dear friend, (thanks JJ!!) not called and told us to "put it on, NOW !!"...we would have missed them !!! As soon as they came on the screen, both Mia and I were hooked !!!!  These are three of the most talented young men we've seen perform in a VERY long time !!!!  And, they are amazing !!!!

From left to right in the pic above is:  Piero, Gianluca & Ignazio.  Oh yeah, all Italian, all the time !!! ;)  And, since I am Italian, and Mia is 1/2 Italian...well, they're just SO up our alley !!! lol 
In case you've never heard of them....have a listen.... ;)

Oh yeah, incredible....we know !!!! ;)  And, to think....Piero is 17 (may have just turned 18), Gianluca & Ignazio...both 16 !! ;)

Now, onto the amazing people !!! Through a video of Mia which I had posted on Il Volo's fan page, we were spotted by (and have since adopted ! LOL) Wendy Marcinkiewicz.  She heads up Il Volo's fan club out of Houston, is a huge fan, and loves our Mia so very much !!!  Wendy put Mia out on every fan page imaginable, and literally sent Mia "around the world" !!!  She's asked everyone to help us pray !!!....on  Mia's facebook page (which you can access on the right)...we have met and received messages of love, hope and incredible prayer from all over !! We have heard from Mexico, Venezuela, Brazil, Indonesia, Italy, France, and of course from right here in the good old USA !!! And the list continues to grow.  These boys can't imagine the impact they've had and how they've touched people everywhere !!!  I can't tell you how kind and loving everyone has been !!!!!
Wendy, Caitlyn, Gladys and everyone have touched our hearts sooooooo much !!!!! And, we do truly love and appreciate you !!!  Il Volo fans everywhere have blessed our lives !!! xoxo
Ignazio and his beautiful fiance, Francesca have both sent Mia messages on facebook, "wishing her all the good of this world", "sending her BIG hugs & kisses" they say they will "pray without ceasing for the little princess", and that she has kidnapped their hearts.  Yeah, these kids are worthy of "all the good of this world", we love them and wish them all the best !!

So, there you go....amazing group....amazing people !!! Does our Mia have good taste or what ?????  Give Il Volo a try....become a're going to find yourself in some unbelievable company !!!!

 Thank you Il Volo for the smile you bring to my Mia, to me, and to countless others !!!
Thank you Il Volo fans everywhere for your love, support and prayers !!!!  We add you to an amazing 'circle of love' for our Mia, and we are proud to call you all our friends !!!

And, as always, thank you all for being a miracle for our Mia !!!! ;)
With a happy, singing O Sole Mio, Mommy's heart,