helloooooooooo my sweet, sweet loves....Team Mia !!!!!
I am soooooooooooo sorry that I have not done a better job of keeping you updated on the latest and greatest here with Mia. Please forgive me !!!! And, in an effort to explain, I offer two things a) most of what there is to report is both sad and frustrating.... and b ) some days, it's all I can do to keep up with it all.
I don't want you guys worrying....overall, thanks be to God, she's okay. But, every day her fight is pretty much the same.....exhausting. We do have some really good days, and when we do, we spend all of our time enjoying them. As a result of her hip treatments and her ongoing daily pain, Mia has been diagnosed and is being treated for PTSD. Yet another dragon to be slain. Her treatments are going well, thanks be to God, and her nightmares are slowly starting to fade, as well as some of her anxiety, but it is still going to be "a road". Lots of times (we are learning) that with terrible anxiety issues, one can develop stomach trouble. This is where we are now. Her gastro doctor will (more than likely) be calling for an MRI of her stomach to "see what he can see" about these terrible pains she gets which double her over. That's what was mentioned. She goes back to see him next Wednesday, not sure if the MRI will be before or after that appt. Just wishing we could find out what's happening there. So, for an update and outline of what's coming up, we'll see:
August 6th - Gastroenterologist
Sept. 3rd - Physiatrist
Sept. 10th - Pain Management Team
Sept. 29th - Orthopaedic Surgeon (follow up)
Everyone is trying so hard to get her pain and anxieties under control, but it is hard. We are caught in a terrible cycle, where she needs to go to the doctors to get help, but doing so makes her anxieties worse. We are doing our absolute best to get this done, and believe me when I tell you....Daddy and I will not rest until it is !! She is looking forward to trying to start back to ballet soon, and to starting school !! All next month !!! I'm going to try to scan the pics from her recital several months ago.....they wouldn't let us record it, but I have some pics !!
We are FOREVER and ETERNALLY grateful for the love, support and prayers that you all give !!!! We NEVER take any of it for granted, and every night we pray for all of you! Each and every night, Mia says the words, "Please, please bless Team Mia! Please bless them as they have blessed us!".....You are covered in prayers and you are loved !!!
I apologize for the length of this post....'catch up' is never fun, and I will try to do better at keeping you all aware !! When life gets too crazy, please forgive me when I can't keep up. It is NEVER due to a lack of love or appreciation ! We are PROFOUNDLY grateful for each and everyone of YOU....Mia's Miracles !!!!!!
Thank you for never giving up and for loving us through !
Please remember us in your prayers !!!
And, please know that you are loved !!!
With a mother's very, VERY grateful heart !!!!!
Mamma <3
Mia's Miracles...
Because there's nothing "hip" about dysplasia !
Hope fights hip dysplasia
Tuesday, July 29, 2014
Tuesday, June 25, 2013
Update 6/24/13
Hello Precious Ones !!!!! ;)
Yesterday, Monday (6/24/13) we had a post surgical follow up with Mia's surgeon to discuss her progress !
Overall, he was pretty pleased with what he found !! There were a couple of things he wasn't quite so thrilled with......but, let's focus on the positive points first !!!! ;)
1. Her hips are still securely in place !! YAAAY!!! Praising God !!! ;)
2. We have NO signs of subluxation !!! (this is basically a 'slipping' or 'sliding' of the femur within the socket causing a partial dislocation)
3. We have NO signs of AVN !!!! (AVN is avascular necrosis. It is when the blood supply is hindered and/or lost and so the ball or 'head' of the femur begins to die due to the lack of blood)
4. Good range of motion !!! (pretty self explanatory !!! ;)
All things to be very grateful for !!! ;) This part made us so happy !!!!
As a rule of thumb, hip dysplasia is measured more or less by the angle of the acetabulum (the hip socket). A normal or good range for the acetabulum is between 18° and 20°.....right now, Mia's left hip is sitting at about 25°, and her right is about 28°. They still need to come down. Mia complains much more about pain in her right side as opposed to her left, and this is part of the reason why. Now, at the same time, we are going to sing some additional praises! To give you an idea of how far, (by the amazing grace of God, and the gifts He gave to her surgeons), she has come and a better picture of how severe her dysplasia was...is....was ;), when we began this journey, Mia's angles on both sides were around 60° !!!!!!!!!! That's pretty ugly !!!! However, we do not ever want to become so 'weighed down' by the road still ahead of us that we forget to give thanks for and celebrate how far we've come !!!! We are extremely grateful !!!!!! <3
So now, let's cover the things he wasn't so happy about:
1. Her pain.... he was really very concerned with how much she still hurts.....we are still on a regular regimen of pain meds, we believe it is mostly due to #2. her stiffness. The front portion of her pelvis and hips is still very, very tight. Despite a lot of usage, they don't seem to be loosening up. This seemed to concern him a great deal as well. And lastly,
3. her endurance. possibly also caused by #2. \
Still, there are more positives than negatives, and we're going with those !!!! ;)
The plan of action......for now, we have a series of physical therapy exercises to do at home (while we straighten out her insurance fiasco, which is just nuts!) and so, we'll do those for the next 6 months to see how she progresses. We will change the game somewhat, and begin to push her a little more, in an effort to build up her endurance. Yeah, we know this is going to be an ugly process. I see many meltdowns coming, so if you see us in a store and you hear the meltdown, it's just us "pushing through". We need to find out if the stiffness can be resolved through exercise and usage or if there is something physically stopping them from loosening. If they do not loosen on their own, we'll have no choice but to go back in surgically to help them. We see Dr. Oswald again on December 23, and we will again reassess her progress and decide how soon another surgery will be needed. As it stands right now, unless we need to go in to resolve this issue (and of course, we pray we don't!) her next surgery will likely be next Summer. Somewhere between ages 5 and 6 (can't believe she'll be 5 in February !!!!! :/ ) This is when they will need to go in and do what they call "fine tuning" the hips to allow for her growth.
We can't thank you all enough for the love and support you've shown us throughout our journey, and for the love and support you'll continue to show as we push through ! We are so grateful for the gift of each of you, and the light of God's love that you've brought to us. Thank you !!!!!!!! ;)
Team Mia is and always will be the best !!!!!
While we were there, we made a presentation !! ;) As part of One Hip World's 'Grateful Hips and Hearts' campaign, we presented Dr. Oswald and the Staff of Pediatric Orthopaedic Associates with a certificate of 'love and appreciation' !!!!! ;) Just thanking them for their love and kindness !!!! ;)
Below are some pictures of our visit, as well as Mia with Dr. Oswald and 4 members of the POA staff who received the certificate on behalf of themselves and everyone else !!! We're very blessed with everyone at POA, and we shudder to think what our journey would be like without them !!!!!
If you'd like a copy of the certificate to present to someone you are grateful for, just email One Hip World at onehipworld@yahoo.com and we'll get you one sent right over !!!! ;)
Enjoy the pics, thank you for staying with us, thank you for your love and prayers....know that you are loved and prayed for daily, and thank you for choosing to be a Miracle for our Mia !!!! <3
With a Mamma's grateful heart !!!! xoxoxo
Yesterday, Monday (6/24/13) we had a post surgical follow up with Mia's surgeon to discuss her progress !
Overall, he was pretty pleased with what he found !! There were a couple of things he wasn't quite so thrilled with......but, let's focus on the positive points first !!!! ;)
1. Her hips are still securely in place !! YAAAY!!! Praising God !!! ;)
2. We have NO signs of subluxation !!! (this is basically a 'slipping' or 'sliding' of the femur within the socket causing a partial dislocation)
3. We have NO signs of AVN !!!! (AVN is avascular necrosis. It is when the blood supply is hindered and/or lost and so the ball or 'head' of the femur begins to die due to the lack of blood)
4. Good range of motion !!! (pretty self explanatory !!! ;)
All things to be very grateful for !!! ;) This part made us so happy !!!!
As a rule of thumb, hip dysplasia is measured more or less by the angle of the acetabulum (the hip socket). A normal or good range for the acetabulum is between 18° and 20°.....right now, Mia's left hip is sitting at about 25°, and her right is about 28°. They still need to come down. Mia complains much more about pain in her right side as opposed to her left, and this is part of the reason why. Now, at the same time, we are going to sing some additional praises! To give you an idea of how far, (by the amazing grace of God, and the gifts He gave to her surgeons), she has come and a better picture of how severe her dysplasia was...is....was ;), when we began this journey, Mia's angles on both sides were around 60° !!!!!!!!!! That's pretty ugly !!!! However, we do not ever want to become so 'weighed down' by the road still ahead of us that we forget to give thanks for and celebrate how far we've come !!!! We are extremely grateful !!!!!! <3
So now, let's cover the things he wasn't so happy about:
1. Her pain.... he was really very concerned with how much she still hurts.....we are still on a regular regimen of pain meds, we believe it is mostly due to #2. her stiffness. The front portion of her pelvis and hips is still very, very tight. Despite a lot of usage, they don't seem to be loosening up. This seemed to concern him a great deal as well. And lastly,
3. her endurance. possibly also caused by #2. \
Still, there are more positives than negatives, and we're going with those !!!! ;)
The plan of action......for now, we have a series of physical therapy exercises to do at home (while we straighten out her insurance fiasco, which is just nuts!) and so, we'll do those for the next 6 months to see how she progresses. We will change the game somewhat, and begin to push her a little more, in an effort to build up her endurance. Yeah, we know this is going to be an ugly process. I see many meltdowns coming, so if you see us in a store and you hear the meltdown, it's just us "pushing through". We need to find out if the stiffness can be resolved through exercise and usage or if there is something physically stopping them from loosening. If they do not loosen on their own, we'll have no choice but to go back in surgically to help them. We see Dr. Oswald again on December 23, and we will again reassess her progress and decide how soon another surgery will be needed. As it stands right now, unless we need to go in to resolve this issue (and of course, we pray we don't!) her next surgery will likely be next Summer. Somewhere between ages 5 and 6 (can't believe she'll be 5 in February !!!!! :/ ) This is when they will need to go in and do what they call "fine tuning" the hips to allow for her growth.
We can't thank you all enough for the love and support you've shown us throughout our journey, and for the love and support you'll continue to show as we push through ! We are so grateful for the gift of each of you, and the light of God's love that you've brought to us. Thank you !!!!!!!! ;)
Team Mia is and always will be the best !!!!!
While we were there, we made a presentation !! ;) As part of One Hip World's 'Grateful Hips and Hearts' campaign, we presented Dr. Oswald and the Staff of Pediatric Orthopaedic Associates with a certificate of 'love and appreciation' !!!!! ;) Just thanking them for their love and kindness !!!! ;)
Below are some pictures of our visit, as well as Mia with Dr. Oswald and 4 members of the POA staff who received the certificate on behalf of themselves and everyone else !!! We're very blessed with everyone at POA, and we shudder to think what our journey would be like without them !!!!!
If you'd like a copy of the certificate to present to someone you are grateful for, just email One Hip World at onehipworld@yahoo.com and we'll get you one sent right over !!!! ;)
Enjoy the pics, thank you for staying with us, thank you for your love and prayers....know that you are loved and prayed for daily, and thank you for choosing to be a Miracle for our Mia !!!! <3
With a Mamma's grateful heart !!!! xoxoxo
before the exam, when we were still smiling !!! ;) |
I loooove this face !!!!! ;) |
Mia and the fantastic, Dr. Oswald |
Ms. Tracee, Ms. Dorothy, Ms. Theresa & Ms. Lynn |
Tuesday, May 14, 2013
One step at a time.....
Just a little update.....I promised to try to do better at keeping her blog updated, although, there really isn't anything new or exciting happening.....but, I have to believe in my heart that we are moving forward.
Every day, we continue to battle pain and "phantom" fevers....we've done lab after lab, and while some things come back "abnormal", nothing seems to give us any clear cut answers. Some days are better than others....she has really good days, where she walks, run, jumps and plays....and, you can't imagine how it warms my heart to watch her do so. The downside is that those days always come at a price. Within hours, her pain is.....almost consuming. Fevers always seem to follow suit. Her pain/fever reducing meds help, but, not for long. They are a "band-aid" we use....it helps the symptoms, but we are praying to eliminate the cause. Rheumatology still sits as a "maybe"....and so, the circle continues.
Yesterday, she woke up feeling pain, and looking more pale than usual, and a couple of times, she said she was dizzy. When we took her for her blood work around 1:30 or so, I noticed she felt warm. I had no thermometer to check her, and she had no other symptoms other than the pain. She was amazingly brave and strong, and didn't shed a tear as they stuck her. We did our usual mantra...."What do we say, Mia?"...."No Fear, Mamma!"...."that's right, baby....why are we not afraid?"...."Because, Jesus is with me!".....;) If nothing else, she knows the most important one to turn to....in times of joy, times of pain, times of celebration and times of fear. This alone comforts my "mother's heart"...
Within 5 minutes of completing the blood draw, she started to look strange....next thing I knew, she had vomited all over herself, Daddy, the tech, the floor....just everywhere.....more color drained from her face....we get her settled, and her little legs were so wobbly, she couldn't stand. Was it the blood draw ?? the fever ??? the pain ??? Truthfully, we don't know !! After a few hours, she seemed better....was a little relieved the pediatrician didn't call back...would have felt silly saying "she's ok now"....still we need to find out why these things keep happening, and so randomly. She slept well last night, and today seems...well, what has become more the norm, for her.
I know and believe in my heart that we will get her through this.....we will find answers, and we will continue to fight until we do !! As we all heard and learned in my last post....we fully intend to "Finish the Drill"!!!! ;)
Please continue to pray for Mia and for her doctors and all who love and look after her......pray for our strength, courage, faith, determination, healing and comfort while we seek answers. And know, beyond a shadow of a doubt that Team Mia is prayed for daily !!!!! ;)
Thank you, for loving us through it all......and thank you, thank you, thank you for choosing to be a miracle for our Mia, and know that we will not give up on our fight....we'll continue to take it, one step at a time !!!!!!!!!!
We love you all !!!!
With a Mamma's very grateful heart,
~ <3 Gina <3 ~
Every day, we continue to battle pain and "phantom" fevers....we've done lab after lab, and while some things come back "abnormal", nothing seems to give us any clear cut answers. Some days are better than others....she has really good days, where she walks, run, jumps and plays....and, you can't imagine how it warms my heart to watch her do so. The downside is that those days always come at a price. Within hours, her pain is.....almost consuming. Fevers always seem to follow suit. Her pain/fever reducing meds help, but, not for long. They are a "band-aid" we use....it helps the symptoms, but we are praying to eliminate the cause. Rheumatology still sits as a "maybe"....and so, the circle continues.
Yesterday, she woke up feeling pain, and looking more pale than usual, and a couple of times, she said she was dizzy. When we took her for her blood work around 1:30 or so, I noticed she felt warm. I had no thermometer to check her, and she had no other symptoms other than the pain. She was amazingly brave and strong, and didn't shed a tear as they stuck her. We did our usual mantra...."What do we say, Mia?"...."No Fear, Mamma!"...."that's right, baby....why are we not afraid?"...."Because, Jesus is with me!".....;) If nothing else, she knows the most important one to turn to....in times of joy, times of pain, times of celebration and times of fear. This alone comforts my "mother's heart"...
Within 5 minutes of completing the blood draw, she started to look strange....next thing I knew, she had vomited all over herself, Daddy, the tech, the floor....just everywhere.....more color drained from her face....we get her settled, and her little legs were so wobbly, she couldn't stand. Was it the blood draw ?? the fever ??? the pain ??? Truthfully, we don't know !! After a few hours, she seemed better....was a little relieved the pediatrician didn't call back...would have felt silly saying "she's ok now"....still we need to find out why these things keep happening, and so randomly. She slept well last night, and today seems...well, what has become more the norm, for her.
I know and believe in my heart that we will get her through this.....we will find answers, and we will continue to fight until we do !! As we all heard and learned in my last post....we fully intend to "Finish the Drill"!!!! ;)
Please continue to pray for Mia and for her doctors and all who love and look after her......pray for our strength, courage, faith, determination, healing and comfort while we seek answers. And know, beyond a shadow of a doubt that Team Mia is prayed for daily !!!!! ;)
Thank you, for loving us through it all......and thank you, thank you, thank you for choosing to be a miracle for our Mia, and know that we will not give up on our fight....we'll continue to take it, one step at a time !!!!!!!!!!
We love you all !!!!
With a Mamma's very grateful heart,
~ <3 Gina <3 ~
Sunday, May 12, 2013 - Mother's Day....feeding the goats at Southern Belle Farms, McDonough |
Picking some fresh strawberries at the farm ! We had to sit, "just for a while, Mamma" this child is my heart !!! |
Tuesday, April 30, 2013
Live life, have faith and “FINISH THE DRILL!”
You might want to grab a cup of coffee….this post is going
to “take a minute”… ;)
Soooo….who’s mad at me for not updating ??!! [hanging my head
in shame.] I’m sorry…I truly am. I have been a little overwhelmed, as we have
been dealing with a series of….not really “setbacks” so much as problematic “snags”. For the past several months, Mia has been
contending with an unexplained increase in pain as well as random high
fevers. When she has a ‘flare up’, she
spends about a week in bed until it passes.
We are working closely with her pediatrician, her surgeon and now a
rheumatologist to get some answers. We
are trying to figure out if it is related to her hip dysplasia. We are blessed to have these people as well as
all of you on our “team”….Team Mia. And,
do not worry, God is in control, and I promise to do better at keeping her blog
updated with what we find !!! ;) Never for a moment am I ever NOT grateful for
your love and prayers! We all are. ;)
Now, while we are on the subject of “teams”, I want very much to share
something with all of you.
Here in the USA, American football is very big….REALLY big….particularly on the
College level. I am not pointing any
fingers, since I myself have a love for the game. I grew up in a football family….my Dad
coached, my brothers played, my Mom gave of her time/talents as a team Mom, and
I cheered. I have a respect for team
sports which my Dad shared with us…many things you need for life can be learned
in playing a team sport. Things like
teamwork, respect for authority, determination, perseverance, endurance,
humility. (Yes, humility….take a string
of losses and it will save you from an ego swell! Haha)
So, while I’ve never actually played the game, I ‘get it’, I love it, I watch
it, I learn from it! And, while neither my husband, nor I ever attended the
University of Georgia, we are very much “Dawg” fans…both my Michael and I have
family members who have graduated from UGA, and…well, once a GA family, always
a GA family !!! ;)
While I have followed GA football for many years, and I have
always had a healthy respect for past players and Coaches….I have a confession….none
have touched my heart as much as our current Coach, Mark Richt has. I have not met him personally, but I have yet
to hear from anyone who has met him that he is anything other than a genuinely
good man. I think it is probably his
courage to share his faith that first made me pay attention when he
talked. With his permission, I want to share with you
3 little words, with 1 BIG message! “FINISH
THE DRILL”. These are the words God gave
Coach Richt to use to motivate his players and the other students….little did
he know that God would use him and his words to motivate many others beyond the
football field. Myself included. When I first heard those words, “Finish the
Drill”, I had just begun a personal battle to lose weight. (they helped and I did….but, that’s another
story for another day !! haha) That
phrase resonated within me. “Finish the
Drill”. When Mia was diagnosed with her
hip dysplasia, again they surfaced, and in my heart I heard, “finish the drill”. We were given a brand new “drill”.
By its definition, a “drill”
is (according to the online dictionary), “A task or exercise for teaching a skill
or procedure by repetition.” And, here’s
the important, critical thing….in order for a drill to be effective, you must
have a GOAL !!! What is your goal? What are you working towards?
My earthly goal is simple.
To have a happy, healthy little girl who can live, love and enjoy her
life while glorifying God through it.
For me to reach my goal it will take many drills to build my faith and
to teach my Mia. And, in His infinite
wisdom, God will allow me (and you!) to do it again and again and again until
we get it right, and it becomes a part of our very nature. I’m grateful for this! So, so grateful.
On the surface, drills can sometimes seem pointless…and, they are exhausting! However,
a specific drill is used in a specific situation to develop a specific
attribute or ability. A drill done hard
enough and long enough will rock you to your core, and make you reach into a
place deep within your heart and soul to find the strength to finish it. (Football
players everywhere are shaking their heads in agreement right now! hahaha…”death crawl”, guys ???!! hahaha )
Drills can lift you up, and take you to a higher place if you let them. That is what they are designed to do! That is their purpose! They ‘invade’ you, they permeate your being,
mold you and push you to greatness.
And,
let’s face it, the old adage is true, ‘anything worth having is worth working
for.’
“Finish the Drill” means, knowing what (and who) you are fighting for and not
losing sight of that. Despite how tired
you may get….how many ‘blows’ you may take…how many setbacks you may have. You must start strong, stay strong, and
finish STRONG! And, you can do this,
because He promises to do it with you!
He, God, is our Coach. He will
lead us and guide us, encourage us and push us, because in the end that is what
a good Coach does, but more importantly it is what a loving Father does. He hand- picked each of our drills…knowing
the best one to develop in us what we would need to accomplish our goal. He has picked yours too. Whatever your “field of battle” may be….whether
its hip dysplasia, some other illness, an addiction, a hurting heart….He
knows. I promise you, He knows. And, He is with you, always! Will it be easy? No.
Will you get tired? Yes. Will you
want to give up? Absolutely!….. Will it be worth it? YES!!!!
I found an article recently, where Coach Richt talks about his job, and he is
quoted as having said, “…I couldn’t do
this job without His [God’s] strength, power, and wisdom. We all have a
limitation to our knowledge and our strength, our stamina—whatever it is, we
all have limits. Once we hit the limit, if we have nowhere to turn, that’s when
we have despair and depression. But if we know God is there for us and we are
connected to his power, we can keep going.” This statement is true in coaching… true in
football....true in every, single aspect of life. If God didn’t believe you could do it, He
never would have chosen you for the job.
He does not ever set you up to fail.
He says, “A thief comes only to steal and slaughter and destroy; I came
so that they might have life and have it more abundantly.” John 10:10
The field of hip dysplasia is an ugly place. Particularly here in the last few weeks, it
has felt especially rough.
Unfortunately, we have new people, new children taking the field for the
first time, just beginning their fight.
We have some who are deep within the 4th quarter. Others, like ourselves, are praying and
waiting to hear the buzzer to signal that we’ve at least made it to half
time. And, as I look around at my
teammates, many of them are beaten and bruised.
They are weary, and frustrated. And,
we are all so very tired. So now, NOW is
the time for you to reach within. Now is
the time for you to dig deep and find within yourself the courage to
continue. As one of my most favorite
lines from one of my most favorite movies says, “…it’s all heart from here”. (Facing the Giants….if you haven’t seen it,
check it out, and you will LOVE this scene !!!)
Make the choice! Choose to
fight! Choose to keep going! In time, you will win!
Know that throughout your battle, God will pick drills
especially for you, yes, and sometimes, you will win….sometimes you will
lose. How many W’s or L’s you have aren’t
nearly as important as the amount of heart with which you fought, the experiences
you drew from having fought, and the people you touched along the way. He will also give you incredible teammates,
people who share the same ‘field’…those who will fight with you. Just remember to look around….. You’re not
alone….not only are there teammates for you to rely on….there are many who are
cheering you on, and your heavenly “Coach” and Father will never let you down!
Whatever the battle, fight hard and fight smart!
Remember to:
Protect your mind….do not allow things like doubt, fear and anxiety to take root
and set up residence. They will deter
you from your goal, and interrupt your drill.
Exercise your knowledge!
Protect your words…..words have power!
What you say, you will bring in to existence! If you say you “can’t”, then, you “won’t”….it
really is that simple. Choose to stay
positive. Exercise your will!
Protect your heart….safeguard against despair and depression. They have no place in a fighter like you. Exercise your hope!
And, protect your Spirit…..it is where God dwells with you, and in you, and through
you. Exercise your love!
I want to thank Coach Richt for allowing me to share his ‘motto’
with all of you. I am grateful for the
encouragement and strength I have received from them, and since they are words
which I believe have been inspired by God, I hope that you will find in them
the strength you need to look deep within and find whatever tools you may need
in your personal battle.
When you get tired….when you feel you can’t take another
step…when you feel that you are losing hope, remember…..I believe in you….I
believe in the one who made you….I know you can do it !!!
Now, go….live life….have faith…….and FINISH THE DRILL !!!!!!!!!!!!! ;)
Oh, and lest we forget…….GO DAWGS
!!!!!!!!!!!!!!!!!! ;)
With a Mamma's grateful heart,
~Gina
~Gina
Wednesday, November 7, 2012
Love & Hope the Hip Hippo !!
Greetings one and all !!!! ;)
I owe everyone such an apology for not having updated Mia's blog !!! I do apologize !!!!
Mia had her second surgery back in March, and well....the honest to goodness truth of it, is that her second surgery was just sooo ugly, that I really couldn't make myself write about it. Now, after much prayer and having plunged myself into several others projects, it's better. It doesn't upset me as much, mostly because I see my blessings. I'm choosing to focus on those !! So, a condensed version of her second surgery (and, pleeeease use this information to make yourself aware of what is out there, I believe knowledge is power, even if the knowledge is scary, and ugly !!...but, whatever you do, please do NOT think or assume that what went on with Mia is what will happen with your little one !!!!!!!!!! Every child and every ddh is unique, and Mia's case just happens to be one of the more severe.)
Before I share, I will tell you that Mia is doing AMAZING !!!!!!! ;)
Her second surgery caught us all off guard. The time in between surgeries, while not long (and she was pretty much immobile), proved problematic, because it gave her left femur time to "drift" farther up. By surgery time, her left femur was well up under her ribs. Apparently, you (the surgeon) only has so many 'chances' to get the hip in, before it is rendered pretty much useless. Our amazing surgeon spent those quickly. He was then faced with a choice....leave her hip out permanently, or "take out her left leg"....after much soul searching, he made the VERY difficult choice to take out her left leg, because he truly felt in his heart that doing so would be temporary, and would prove best for her over-all quality of life. To "take out her left leg", meant that he paralyzed her. I saw the pain in his eyes as he explained it to us....I knew how hard this choice was for him...but, I also knew that my baby was paralyzed. A lot to process. He warned us the paralysis could take years to go away.....GOD IS AWESOME, and on day 6 post-surgery, Mia moved her big toe !! Today, Mia's paralysis is 100% gone !! ;) While we were still processing the paralysis, we jump to day 2 post surgery....this is when Mia began to 'crash'....all of her vitals were just.....well, she was in real trouble !! They called for an immediate transfusion to save her.....after tears, praying, biting fingers nails, (and I think, quite truthfully I may even have been physically sick) she responded to the transfusion, and recovered. Near death will definitely put perspective on paralysis....I remember thinking..."just save her....I don't care if she can't walk....I need her here with me....just leave her with me!"....we knew surgery ran risks....all surgery does....we are just so grateful.....so..soooo grateful that surgery #3 (technically it was her 3rd, since her 2nd was a cast change/arthrogram) is behind us....so grateful that Mia is back to walking, running, jumping, playing and dancing....so grateful for so much !!! We consider that surgery a great success. Yes, her legs are still different lengths, and always will be....yes, she still walks with a "swag" and a little limp....yes, she still has pain....however.....the pain is soooooooooo much better than where it was, as are the swag and limp !! She's getting there, and she'll be better than ever !!!! We take her back into surgery in February to remove the metal in both legs....then another surgery for 'tweaking' a year after. Hip dysplasia is not quick run....it is in fact a 'marathon', and you must pace yourself taking one step at a time !!! ;)
One of the projects I have poured myself into as my way of working through things is the new book. I firmly believe that all of the anger and frustration I was feeling needed to be channeled....it needed to be put to some good use so that it didn't not consume me or my family. What better way than to channel all of it back onto hip dysplasia !!! Let's take all the ugly and use it for something good and positive !!! Let's help other Mom/Dads & little ones be a little less afraid of the road ahead....let's make a road sign....let's help point the way.....let's spread some hope..... ;)
And, so....after almost a year, Hope, the hip hippo was born !!! ;) She is a sweet little hippo, around 3 or so, so very much a toddler, who is diagnosed with hip dysplasia. The book takes her through her diagnosis, surgery, casting and recovery and I am so proud to say has been very well received !!!! To hear how Hope is helping to explain things to the little ones....help Moms & Dads understand what they may be up against, as well as help siblings and other children understand better what some go through....well, I am just amazed !! Within 2 weeks of her release, she jumped to #3 on the publisher's best sellers list, was #1 on 'Amazon's Hot New Releases' in both of her categories, and was in the top 10 of Amazon's Best Seller's list in her categories.....I tell you this not because it has anything to do with me.....I tell you so that you can see how much of a need there is for hope against hip dysplasia !! I am thrilled that HOPE is filling such a void, but I am heartbroken to realize how long that void has been there, and how many need her.
I have to say to my "partner in crime", Julie, that without her, Hope never would have happened !!! And, without our dear friend, Cherie Turner, HOPE wouldn't have come to life !! She drew her perfectly and I fell in love with her face, immediately !!!! lol.....most importantly, God. Without God and his grace, HOPE couldn't have been born. God is the source of all hope.....and He, himself wanted this book done. It is His idea....his words...and He has brought her to fruition. He touches people through her (HOPE), and I am just so privileged that he gave me the grace to not be consumed by that "poor me" feeling that I had....and that, He allowed me to play a small role in HOPE's being !!!! ;)
Here is the link, if you would like to purchase Hope, the hip hippo.....this link goes to our publisher's site, but please, please know (especially if you are international) that Hope is available on Amazon and Barnes & Noble !!!!
I owe everyone such an apology for not having updated Mia's blog !!! I do apologize !!!!
Mia had her second surgery back in March, and well....the honest to goodness truth of it, is that her second surgery was just sooo ugly, that I really couldn't make myself write about it. Now, after much prayer and having plunged myself into several others projects, it's better. It doesn't upset me as much, mostly because I see my blessings. I'm choosing to focus on those !! So, a condensed version of her second surgery (and, pleeeease use this information to make yourself aware of what is out there, I believe knowledge is power, even if the knowledge is scary, and ugly !!...but, whatever you do, please do NOT think or assume that what went on with Mia is what will happen with your little one !!!!!!!!!! Every child and every ddh is unique, and Mia's case just happens to be one of the more severe.)
Before I share, I will tell you that Mia is doing AMAZING !!!!!!! ;)
Her second surgery caught us all off guard. The time in between surgeries, while not long (and she was pretty much immobile), proved problematic, because it gave her left femur time to "drift" farther up. By surgery time, her left femur was well up under her ribs. Apparently, you (the surgeon) only has so many 'chances' to get the hip in, before it is rendered pretty much useless. Our amazing surgeon spent those quickly. He was then faced with a choice....leave her hip out permanently, or "take out her left leg"....after much soul searching, he made the VERY difficult choice to take out her left leg, because he truly felt in his heart that doing so would be temporary, and would prove best for her over-all quality of life. To "take out her left leg", meant that he paralyzed her. I saw the pain in his eyes as he explained it to us....I knew how hard this choice was for him...but, I also knew that my baby was paralyzed. A lot to process. He warned us the paralysis could take years to go away.....GOD IS AWESOME, and on day 6 post-surgery, Mia moved her big toe !! Today, Mia's paralysis is 100% gone !! ;) While we were still processing the paralysis, we jump to day 2 post surgery....this is when Mia began to 'crash'....all of her vitals were just.....well, she was in real trouble !! They called for an immediate transfusion to save her.....after tears, praying, biting fingers nails, (and I think, quite truthfully I may even have been physically sick) she responded to the transfusion, and recovered. Near death will definitely put perspective on paralysis....I remember thinking..."just save her....I don't care if she can't walk....I need her here with me....just leave her with me!"....we knew surgery ran risks....all surgery does....we are just so grateful.....so..soooo grateful that surgery #3 (technically it was her 3rd, since her 2nd was a cast change/arthrogram) is behind us....so grateful that Mia is back to walking, running, jumping, playing and dancing....so grateful for so much !!! We consider that surgery a great success. Yes, her legs are still different lengths, and always will be....yes, she still walks with a "swag" and a little limp....yes, she still has pain....however.....the pain is soooooooooo much better than where it was, as are the swag and limp !! She's getting there, and she'll be better than ever !!!! We take her back into surgery in February to remove the metal in both legs....then another surgery for 'tweaking' a year after. Hip dysplasia is not quick run....it is in fact a 'marathon', and you must pace yourself taking one step at a time !!! ;)
One of the projects I have poured myself into as my way of working through things is the new book. I firmly believe that all of the anger and frustration I was feeling needed to be channeled....it needed to be put to some good use so that it didn't not consume me or my family. What better way than to channel all of it back onto hip dysplasia !!! Let's take all the ugly and use it for something good and positive !!! Let's help other Mom/Dads & little ones be a little less afraid of the road ahead....let's make a road sign....let's help point the way.....let's spread some hope..... ;)
And, so....after almost a year, Hope, the hip hippo was born !!! ;) She is a sweet little hippo, around 3 or so, so very much a toddler, who is diagnosed with hip dysplasia. The book takes her through her diagnosis, surgery, casting and recovery and I am so proud to say has been very well received !!!! To hear how Hope is helping to explain things to the little ones....help Moms & Dads understand what they may be up against, as well as help siblings and other children understand better what some go through....well, I am just amazed !! Within 2 weeks of her release, she jumped to #3 on the publisher's best sellers list, was #1 on 'Amazon's Hot New Releases' in both of her categories, and was in the top 10 of Amazon's Best Seller's list in her categories.....I tell you this not because it has anything to do with me.....I tell you so that you can see how much of a need there is for hope against hip dysplasia !! I am thrilled that HOPE is filling such a void, but I am heartbroken to realize how long that void has been there, and how many need her.
I have to say to my "partner in crime", Julie, that without her, Hope never would have happened !!! And, without our dear friend, Cherie Turner, HOPE wouldn't have come to life !! She drew her perfectly and I fell in love with her face, immediately !!!! lol.....most importantly, God. Without God and his grace, HOPE couldn't have been born. God is the source of all hope.....and He, himself wanted this book done. It is His idea....his words...and He has brought her to fruition. He touches people through her (HOPE), and I am just so privileged that he gave me the grace to not be consumed by that "poor me" feeling that I had....and that, He allowed me to play a small role in HOPE's being !!!! ;)
Here is the link, if you would like to purchase Hope, the hip hippo.....this link goes to our publisher's site, but please, please know (especially if you are international) that Hope is available on Amazon and Barnes & Noble !!!!
Aside from what is needed for marketing/advertising type blah, blah, blah.....all proceeds from the sale of HOPE go to the:
Purchasing HOPE directly benefits those with hip dysplasia by helping to fund further research and spread awareness !!!!!!!!!!! ;)
God bless you, each and all....you are always in our heart & prayers....and we are so grateful to you for choosing to be a miracle for our Mia !!!!!
With a Mommy's grateful and humbled heart,
xoxoxoxo
Wednesday, February 22, 2012
One Hip World
We are so happy and proud to be able to be a part of this event and in making a difference in the lives of these children and all those who suffer (and suffer, they do!!!) with hip dysplasia !!!
One Hip World is a world wide day of fundraising to take place before, but preferably on
JUNE 30, 2012 !!
The idea is for YOU...WHEREVER you are in the world, to hold a fundraiser of your choosing, be it a bake sale, book sale, auction, bike ride, 5K walk/run, etc....and then take a picture of you and your 'team' with the check before you send it directly to:
The International Hip Dysplasia Institute
83 W. Columbia St.
Orlando, Florida 32806
Because the International Hip Dysplasia Institute is a Non-Profit 501 (c) 3, your donations are tax deductible, and 100% of the money raised goes towards furthering research and education on hip dysplasia !! ;)
We wish to thank Larry the Cable Guy and his Git-R-Done Foundation for their support of us in this world-wide endeavor to make a difference !!!!!
Together, we can STAND FIRM as we band together to have HEALTHY HIPS 4 LIFE !!!!!
For more information, please email: onehipworld@yahoo.com
or visit One Hip world on Facebook !!
All proceeds go to the:
Always with my heart,
Mamma !! ;)
Thursday, November 17, 2011
Enjoying the break...
Wow !! I can not believe it has been almost a month since I last blogged !!!! Shame on me !!! I'm so sorry !!!! It's amazing how one day just sort of rolls into the next, and before you realize it, a month is gone !! I also can't believe that Mia has been out of her cast for a month !!! Truth of the matter is....we are really enjoying this break !! Mentally, physically, spiritually, emotionally...you name it, we needed it ! Life without a cast is so much better !!! She is loving the freedom !! I wish I could make her understand that the more she uses it, the more it will hurt, but, she is 2 and what can ya do? During the day, she is all over the place !! We didn't expect her to crawl, walk or do much of anything for at least a year. However, our girl (who continues to amaze me daily!) moved her legs as soon as the cast came off! She insisted I put her pants on (didn't expect her to be able to close her legs enough for that), and when asked if she wanted to ride home laying down (her usual casted position) or ride sitting up, she said, "sitting up!!!". And so she did. 4 hours out of the cast, she looked at Daddy and said, "I want to stand". And, so she did. The next day, she announced, "Mamma, I want to crawl"...and, so she did. Her spirit, determination and 'can do' attitude just amaze me !!
Standing up, testing out the new hip just hours after having the cast removed. ;)
Her new favorite thing to do, is to hold your hands, so that you can help her walk. I have no doubt that before long, she will be letting go, and doing it on her own. She's already trying. Only one thing stops her. The pain. Unfortunately, her nights are usually still pretty 'ugly'. Using her legs so much during the day, brings on some horrible pain at night. In turn, the pain will usually trigger a night terror or nightmare of some kind, and so our old routine continues. I do, however, believe we are making progress !! When she does have a good night, it's GREAT !! She sleeps straight through 10-12 hours or so. We are going longer and longer between pain med doses...and overall, during the day she seems happier !! Much happier !! Now, if we can get the nights to get in line, all would be good !!
We are looking forward to holidays, particularly since we know we won't have to deal with casts or surgeries...and we'll even get to spend her birthday (in Feb.) without them as well !!!
We see "the amazing" Dr. Heflin again on Jan. 23rd, to discuss the next surgery, which will be sometime at the beginning of March....but, you know what ?? We 're not going to think about that right now !!! We will cross that bridge when we have to, and for now....we are just going to continue to enjoy the break !!!!!
Here is a little video scrapbook I made of Surgery #1...I apologize for it's length...trying to get 3 1/2 mos. down to 8 minutes was tough !! haha...and I'm sorry that I couldn't include everything...we have been so amazingly showered with love throughout this ordeal, that I could not possibly include it all....but this will give you a pretty good idea of that love and of what we call "Team Mia" !! ;)
We love and appreciate each and everyone of you !!!!! We are blessed beyond words and beyond measure !!!! And, we are so proud to call all of you our friends !!!
Thank you for all that you are, for all that you do...and, for just being you !!!!
And, thank you for being a miracle for our Mia !!!!
With a Mommy's heart,
xoxoxox
Standing up, testing out the new hip just hours after having the cast removed. ;)
Her new favorite thing to do, is to hold your hands, so that you can help her walk. I have no doubt that before long, she will be letting go, and doing it on her own. She's already trying. Only one thing stops her. The pain. Unfortunately, her nights are usually still pretty 'ugly'. Using her legs so much during the day, brings on some horrible pain at night. In turn, the pain will usually trigger a night terror or nightmare of some kind, and so our old routine continues. I do, however, believe we are making progress !! When she does have a good night, it's GREAT !! She sleeps straight through 10-12 hours or so. We are going longer and longer between pain med doses...and overall, during the day she seems happier !! Much happier !! Now, if we can get the nights to get in line, all would be good !!
We are looking forward to holidays, particularly since we know we won't have to deal with casts or surgeries...and we'll even get to spend her birthday (in Feb.) without them as well !!!
We see "the amazing" Dr. Heflin again on Jan. 23rd, to discuss the next surgery, which will be sometime at the beginning of March....but, you know what ?? We 're not going to think about that right now !!! We will cross that bridge when we have to, and for now....we are just going to continue to enjoy the break !!!!!
Here is a little video scrapbook I made of Surgery #1...I apologize for it's length...trying to get 3 1/2 mos. down to 8 minutes was tough !! haha...and I'm sorry that I couldn't include everything...we have been so amazingly showered with love throughout this ordeal, that I could not possibly include it all....but this will give you a pretty good idea of that love and of what we call "Team Mia" !! ;)
We love and appreciate each and everyone of you !!!!! We are blessed beyond words and beyond measure !!!! And, we are so proud to call all of you our friends !!!
Thank you for all that you are, for all that you do...and, for just being you !!!!
And, thank you for being a miracle for our Mia !!!!
With a Mommy's heart,
xoxoxox
Subscribe to:
Posts (Atom)